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Take a Dementia-Friendly Experience From the First Person: Using 360° Video to Meet the Everyday Challenges of Living with Cognitive Decline
How To Deal With People With Dementia
The spread of dementia today creates an emergency that is not limited to medical issues but also includes social issues. For this reason, it is necessary to encourage a change in the perception of the disease that supports a holistic approach to people with dementia. To this end, Dementia Friendly Communities (DFCs) have recently been developed. However, dealing with people with dementia is not always easy due to a lack of understanding of how they experience everyday situations and how they recover from everyday situations. We asked 170 people between the ages of 13 and 75 to “put themselves in the shoes of a person with dementia” for a few minutes with a 360-degree video and find out how easy this activity is with a 360° video. Experience shopping from a first-person perspective. Before and after the experience, the participants expressed their views on the perceived needs and independence of a person with dementia. The results revealed changes in social thinking after first-hand experience of living with dementia. A deeper understanding of what it was like to live with dementia, and participants’ beliefs about the needs and daily autonomy of people with dementia changed after the experience. Through a change in perception, it is possible to conclude that people are willing to integrate themselves into people with dementia, as desired in the DFC approach, but there is still a need for more involvement in the integration process. .
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A recent study on dementia has shown that there is still no valid information on the causes of this disease (Kapasi et al., 2017). There is no effective treatment to stop the cognitive problems and behavioral changes that contribute to the various forms of dementia (Watt et al., 2019). Therefore, a person-centered approach to diagnosis and treatment (Kitwood, 1997) appears to be an important solution for dementia patients. It is also important to consider that one of the best changes in the treatment of dementia so far is to improve the quality of life of people who already suffer from this disease (Landeiro et al., 2018).
For this reason, Dementia-Friendly Communities (DFCs) are emerging worldwide, compared to research to reduce the impact of preventive measures (Hode et al., 2019) and to support early diagnosis (Paulsen et al., 2013). . Their main goal is to increase the independence of people with dementia in cities and increase their quality of life, extend their home as much as possible, and expand social networks (Smebye et al., 2016). DFCs around the world propose educational projects in schools, organizations and groups of people to support them in understanding, respecting and supporting people living with disabilities. The development of DFCs tends, in particular, against groups of people with mild forms of dementia (not in a way that completely interferes with their daily management) and reduces the effort required to achieve their basic needs. , is often presented to a guardian early. Dementia Friendly Families are affiliated with the international DFC network, although each country and each individual family has its own way of being Dementia Friendly. The main purpose of DFCs is to remove barriers to inclusion, to prevent shame and fear in the general public about dementia, and to prevent the potential of people with dementia from being undervalued by professionals, partners and the general public.
Despite the efforts, practical activities that help the community to change Dementia-Friends struggle every day with the misunderstanding of dementia (Swaffer, 2014), finds its way of showing “ageism” (thinking that dementia is a disease specific to elderly). people), “nihilism” (you think that it is impossible to do anything for people with dementia if you are not a professional), and “ignorance” (you think that dementia impairs the ability to understand the environment and you have a goal-directed behavior from the first diagnosis ). Furthermore, the main resistance to the inclusion of a person with dementia arises from the problem of understanding, from a third person, what depends on a person with dementia in that person (this behavior is often described as non-dependent). about disease). Especially since dementia affects the ability to recognize and empathize with a person’s emotions that cannot be perceived by an outside observer due to its nature (Zhavi, 2008), people tend not to understand certain behaviors of a person with the disorder. of generalized dementia (eg, time-varying or disorientation). change) during everyday interactions (such as meeting someone you already know or attending a meeting).
To solve these problems, processes that support practical changes have recently been adopted. For example, the Virtual Dementia Tour
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It is common for many years in the United States; focuses primarily on caregivers and family members of people with dementia and shows how certain barriers may not be able to disrupt their ability to solve simple problems (Beville, 2002). Although there is skepticism about evidence-based practice (Merizzi, 2018), the results of related studies suggest that there may be changes in the management of patients and caregivers after the experience.
The ViveDe project was developed in Italy by the Dementia Friendly Research Group at the University of Bergamo to provide the general public with the opportunity to face dementia from the inside using new technology.
. The main goal of the project is to use virtual reality glasses to present many daily situations that people with dementia may experience in their daily life through 360° videos that can be searched on the x/y axis. Thus, even people who are not familiar with dementia have the opportunity to see dementia from a first-person perspective and experience what it can be like to live with dementia in everyday life (Morganti, 2019).
In this study, we aim to investigate whether the ViveDe approach is effective in developing a Dementia-friendly approach. Our main hypothesis is that after the ViveDe experience forced them to take a first-person perspective, they changed the participants’ thinking about dementia, stopping shame, and showing the role people can play in improving their autonomy. people living with dementia. Specifically, our research shows that after a 360° video experience, participants will change their thoughts on:
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A total of 170 (65 men and 105 women) aged 13 to 76 years (Mean = 39.29, SD = 17.78) participated in the study. Additionally, 99 participants reported no family history of dementia, while the remaining 71 reported having a family history.
After signing the consent form, the participants entered the experiment and were asked by the experimenter to answer the questions described in the next paragraph and displayed on the touch screen. Participants were then taken to a private room, where they were shown a short video of how to interact with 360-degree video. After this explanation, participants could begin their experience with a 6-minute ViveDe video guided by the researcher. At the end of the visual experience, the participants were asked to answer again the same questions that were presented on the screen before the experience. The entire procedure (including the familiarization phase) took 20 minutes. The duration of the experiment is shown in Figure 1.
Data were collected anonymously using a chart posted on the environmental portal. Participants clicked on a screen to tell the experimenter their age and familiarity with dementia (Do they work with dementia? Are they relatives of people with dementia?).
1. Answer three questions to express your views on the rights of people with dementia. Questions are answered on a five-point Likert scale. Related questions:
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(a) Help: Do you feel that people with dementia need regular help with their daily activities?
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2. Click on the pyramid
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